Thank you Meg.

Shin,

Please be cautious about medical advice offered by opinionated know-nothings who do not know the difference between a fungus and a parasite.

Come September and I see that PA-C again, at least the followup is not long from today. Also see my primary care doctor shortly too. It's not a comfortable feeling knowing you can't take antibiotics without a very bad reaction -- there's a lot that only they can take care of, I will have to be especially careful for awhile. I rely on the Lord.

Tomorrow I will have family visiting, my mother drives out. Safe journies I pray for her and us all. :)

Thank you both I will read up on it!

Oh, I just meant hiccups as a manner of speaking. It's just an expression I use. Apologies.

My main symptom is muscle tremors and tics as a symptom now, some exagerrated reflexes and lack of control. Constant muscle shaking, whether I move or not. Gradually getting worse, changes from different muscles to different muscles. As time goes by it affects bigger ones and gets more widespread. It can be very hard to bear, or not too bad, as it changes, but sadly the overall progression is a continual worsening.

Thankfully the pins and needles sensation have not occured in a long time. Thankfully Parkinsons, ALS almost certainly ruled out. A cousin of mine has Parkinsons. MS, still highly unlikely, thankfully, but less unlikely than the former two. The neurologist ruled against MS due to lack of brain lesions seen in an MRI.

I am suspecting all these symptoms are due to some sort of gut pathogen. But I can't confirm it with testing. I suspect it to be that due to it worsening after eating, and worsening severely after antibiotics. At first I thought it was due to c. diff., which I tested postive for, but after the bad reaction when taking antibiotics to take on the c. diff. I am not sure. It could still be due to that, but I suspect some sort of yeast or fungal toxin in the gut, since antibiotics would kill everything off and let it spread. Or if it is c. diff, the die off perhaps caused the big downhill slide by releasing a lot of toxins at once.

But this is all speculation as doctors have not confirmed it. There's a lot they don't know, an atypical reaction like muscle tremors due to a gut pathogen is quite possible but hard to confirm and hard to treat.

I have just ordered a new lab test to try to more thoroughly test for gut pathogens. This is on my own. That's what's next, along with my trying out various over the counter supplements and medications meant to combat gut pathogens -- especially candida, yeasts, and fungi.

 

I am supposed to have another EMG test scheduled, now that my symptoms are more severe it may show something.

I still am not experiencing muscle weakness, which is a good sign at least against ALS, as I believe this would be a first symptom, and the tremors later on.