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Author Topic: Two ER Visits Recently, Prayers Requested  (Read 10077 times)

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Offline shin

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Re: Two ER Visits Recently, Prayers Requested
« Reply #75 on: April 10, 2021, 05:48:37 PM »
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  • Dear Heavenly Friends and Healing Saints, St. Raphael, St. Luke, St. Cosmas and St. Damian and St. Pantaleon.

    Please intercede for Shin, and along with Our Blessed Mother, ask God for healing and mercy.  Most Sacred Heart of Jesus, I place my trust in Thee!
    Amen amen. Amen. Kyrie eleison.
    Thank you.
    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-


    Offline josefamenendez

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #76 on: April 10, 2021, 05:58:25 PM »
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  • Hi Shin,
    Sorry to be a pest.
    I have been reading up on idiopathic tremors, also called essential tremors. I'm sure you have done all of the research already but I'll say it anyway.
    It states the tremors may very well be genetic or at least familial, otherwise of unknown cause.
    The treatments being talked about are botox injections and also a specific kind of ultrasound treatment- I'm sure you've seen it online. here is some info on it.

    Essential Tremor
    Last Updated: 10 March 2021
    Focused ultrasound treatment for essential tremor has been approved by the Food and Drug Administration (FDA) in July 2016. Medicare approved the treatment in all US states as of July 12, 2020.

    Essential tremor (ET) is the most common movement disorder, affecting an estimated 3% of the population, or approximately 10 million individuals in the United States. ET is commonly viewed as a relatively benign disease.
    However, the associated disabling aspects of ET, such as significant tremor of the hands, can impair patients’ ability to eat, shave, write, perform household activities, and function in the workplace.
    The underlying etiology of ET is unclear, but cases often run in families (familial tremor). It has been estimated that approximately 50% of all cases are due to a genetic mutation, and the pattern of inheritance is most consistent with autosomal dominant transmission (i.e. dominant trait).

    Focused Ultrasound Therapy
    Focused ultrasound is a noninvasive, therapeutic technology with the potential to improve the quality of life and decrease the cost of care for patients with essential tremor. This novel technology focuses multiple beams of ultrasound energy precisely and accurately on targets deep in the brain without damaging surrounding normal tissue.
    How it Works
    Where the focused ultrasound beams converge, they produce precise ablation (thermal destruction of tissue), enabling ET to be treated noninvasively. The primary target is a region in the thalamus called the ventral intermєdιαte nucleus (Vim), but other adjacent targets and white matter pathways are also in use.

    Current treatments are being performed on one side of the brain, but there is a study underway of staged bilateral treatments.

    Advantages

    • It is a noninvasive, single treatment that enables patients to recover rapidly and quickly return to activities of normal life (usually the next day).
    • Compared to RF ablation or DBS, focused ultrasound offers a reduced risk of infection, of damage to the non-targeted area, and of blood clot formation.
    • Focused ultrasound offers rapid resolution of symptoms.
    • In contrast to lesioning performed with stereotactic radiosurgery, focused ultrasound does not use ionizing radiation, thus avoiding the side effects of exposure to radiation.
    • Because it is non-invasive, focused ultrasound could be an option for medically refractory ET patients (those who do not respond well to medication) who do not want to undergo surgery.
    [font={defaultattr}]
    Clinical Trials
    Phase 3 Pivotal Clinical Study
    Enrollment has been completed in a multi-center pivotal randomized study to evaluate the safety and efficacy of focused ultrasound for the treatment of medication-refractory essential tremor patients. Results of this study have been reviewed and approved by the FDA.

    A multi-site US clinical trial is investigating staged bilateral treatments for ET. The interval between treatments will be at least nine months.
    A clinical trial in the UK and Spain has begun and is doing staged bilateral treatments. This group will treat the second side after at least nine months have passed after the first treatment.
    Treatment Sites
    Please see a list of possible treatment sites here.
    Regulatory & Reimbursement
    The Exablate system manufactured by Insightec earned FDA approval to treat essential tremor in July 2016. It is also approved for treating essential tremor in Europe, Korea, Canada, Japan, Russia, Taiwan, and the Middle East.

    In the US, the Medicare contractors in the various states incrementally approved focused ultrasound treatment for essential tremor. However, on July 12, 2020, all US sites  approved for payment under Medicare.

    Commercial coverage and Medicaid will typically follow Medicare but should be evaluated with each company and region. Some facilities have a cash payment option, for those who are not willing to wait for insurance decisions for payment. Prices vary, but a rough estimate is $40,000.
    Device manufacturer, Insightec has established an informational website, including patient stories and access to treatment site information. They have also set up a Reimbursement Support Manager, who can help with questions about the status of reimbursements. Her contact information is: Kim Martin, Reimbursement Support Manager, 1-(866) 392-8478 or .
    Additional Information[/font]


    Offline josefamenendez

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #77 on: April 10, 2021, 06:07:52 PM »
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  • Shin-I don't know if your symptoms are similar- or worse. Just wanted you to have this info. Will not bother you further with this, but will continue praying.

    God bless


    Offline shin

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #78 on: April 10, 2021, 06:18:18 PM »
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  • There is one more main symptom, that which is all my reflexes are off, I am often over reaching and have to control how I walk, pick up things, and move with special attention. It is as if I am trying to reach for something and my reflexes go into overdrive and I over reach.

    May the good Lord please have mercy on me, and on us all. Kyrie eleison.

    I see you've posted while I was writing. Essential tremor, yes this is something I have been reading about. I do not think that is what I have but I forget why I thought it not indicated after some research I will have to look at it again.

    Let me see.. the webmds say essential tremor happens more when moving.. this is not the case with me so far.. and both sides of my body are evenly affected.. it started in the head, then spread to the waist, and then all throughout.. but my extremities are so far the least affected rather than most.

    The ultrasound therapy to burn away part of the brain.. I can understand why someone would go that far now sadly.  At least it exists. Thank you for letting me know about this I will have to see if it is an option.

    The Lord is merciful. Lord have mercy on us. Thanks be to God for all His gifts and mercies.

    Even though this is torturous I can smile at times still. The Lord is merciful and has done great things for me. May God forgive me all my sins and have mercy on us all.

    Thanks to everyone for the so needed prayers.
    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-

    Offline Nadir

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #79 on: April 10, 2021, 10:25:40 PM »
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  • Thank you, Shin, for being such an example of courage and faith.  :pray:
    Help of Christians, guard our land from assault or inward stain,
    Let it be what God has planned, His new Eden where You reign.


    Offline shin

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #80 on: April 18, 2021, 12:05:48 PM »
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  • I have my better days and my worse days here, though I am still declining, I will trust in the Lord. It is a beautiful Spring day today, it's good for me to look outside and cease to think about my illness. The flowers beginning to spring up and the birds returning.

    I'm a weak sinner, who does not live up to all the good He has done for me. So many good and holy writings and gifts from the Holy Church and the saints, and I have done  so very little with all that I have been given. But still the Lord is merciful to folks like myself, He truly is magnificent to even the most pitiful of people.

    :pray:
    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-

    Offline SeanJohnson

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #81 on: April 18, 2021, 12:20:11 PM »
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  • I have my better days and my worse days here, though I am still declining, I will trust in the Lord. It is a beautiful Spring day today, it's good for me to look outside and cease to think about my illness. The flowers beginning to spring up and the birds returning.

    I'm a weak sinner, who does not live up to all the good He has done for me. So many good and holy writings and gifts from the Holy Church and the saints, and I have done  so very little with all that I have been given. But still the Lord is merciful to folks like myself, He truly is magnificent to even the most pitiful of people.

    :pray:

    Just wanted to say that I find you to be a very edifying example of a Catholic.  I hope someday I will be more like you.  Let us pray for each other, and please continue to give us updates.
    Rom 5: 20 - "But where sin increased, grace abounded all the more."

    Offline Nadir

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #82 on: April 18, 2021, 06:07:05 PM »
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  • Just wanted to say that I find you to be a very edifying example of a Catholic.  I hope someday I will be more like you.  Let us pray for each other, and please continue to give us updates.
    Yes, I agree wholeheartedly. It is edifying to hear you so full of hope in your suffering, Shin. Praying for you.
    Help of Christians, guard our land from assault or inward stain,
    Let it be what God has planned, His new Eden where You reign.


    Offline donkath

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #83 on: April 18, 2021, 08:29:47 PM »
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  • Thank you Shin.
    "In His wisdom," says St. Gregory, "almighty God preferred rather to bring good out of evil than never allow evil to occur."

    Offline shin

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #84 on: April 21, 2021, 09:08:56 AM »
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  • An important doctor's appt today.

    Kyrie eleison.

    :pray:
    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-

    Offline josefamenendez

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #85 on: April 21, 2021, 03:17:35 PM »
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  • Please update us after the appointment. God bless


    Offline shin

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #86 on: April 21, 2021, 08:23:18 PM »
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  • I am afraid the results were inconclusive, as my case is not run of the mill he does not appear to have ideas on how to proceed further in diagnosing it, but it following up with me in person in two weeks. This was supposed to be an in person visit but due to a mistake was changed to telemed. He said they were being overwhelmed with patients at this time. 

    The next meeting will probably be some physical evaluations, and a new medication suggestion to suppress the symptoms. Perhaps he will have some ideas for further tests that he did not have at this visit.

    I do not have any confidence anything much will come out of it and am probably going to try to schedule an appt with the department head after this next appt if there is no good results, as he has a good reputation.

    I have a lot of strange symptoms, I very tired of it all. There are bad times and the decline continues, but at least there are some times when it is not too bad and I can sleep and think about other things. Thank God.

    Kyrie eleison.

    Thank you, thanks everyone. Lifting you all up in prayer to the Lord in thanks for your prayers and kind words. :pray:
    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-

    Offline FlosCarmeli13

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #87 on: April 21, 2021, 08:25:30 PM »
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  • Still praying  :pray:  :pray:  :incense:

    Surge, Domine, et dissipentur inimici, et eos qui oderunt te, a facie tua!  
    St Michael, the Archangel, defend us in battle!
    +J M J+

    Offline mcollier

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #88 on: April 21, 2021, 09:10:22 PM »
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  •  :pray:

    Offline donkath

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #89 on: April 21, 2021, 09:52:42 PM »
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  •  :pray:
    "In His wisdom," says St. Gregory, "almighty God preferred rather to bring good out of evil than never allow evil to occur."