Dear Heavenly Friends and Healing Saints, St. Raphael, St. Luke, St. Cosmas and St. Damian and St. Pantaleon.

Please intercede for Shin, and along with Our Blessed Mother, ask God for healing and mercy.  Most Sacred Heart of Jesus, I place my trust in Thee!

Ten days since we have heard from shin. Does anyone have contact with him?

Thank you so much for the prayers.

Are you on meds. ( do you get regular flu shots?) Maybe it is side effect. 
How is your diet?  Maybe you have some kind food allergy. Or you could be vitamin deficient.  

I am still here. Thank you again for the prayers. They are very much needed.

Still worsening, not doing well. I will see another doctor on the 21st. Hopefully some more testing will be ordered then so some progress can be made.

Kyrie eleison.

Still worsening...so sorry to hear that. 
Praying for you that you have the strength to endure it.
Thank you for offering your sufferings up for us all!
Stay strong, my friend!

Thank you again.

I welcome any suggestions for exploration. I have had a lot of blood tests and an MRI of the brain and nothing is showing up, but my body is telling me something is very wrong and it is falling apart. I am grasping at straws.

I have tried a B-complex vitamin, it's a good suggestion it is not working though. I have had olive oil in my diet. I don't have diabetes or of course Alzheimers. Though I must ask for prayers for my mother, as she is getting forgetful and it runs in the family so it is a possibility for her. I am hoping she can come see me soon, it is a long way to travel for her at her age. It would be reassuring for us to be together though I hate to burden her with this.

I will see my primary care physician on the 13th but have no expectations as this is not his specialty and he is out of ideas, it is the neurologist on the 21st that may help. But I do not have much confidence either. I have seen him once via telemed and he did not offer much. If he is no help, I will have to look for a third neurologist, and this takes time.. too much time, my time is running out quickly. I do not think I have months unless a new medication is found. The medicine I am on now is near the maximum dose, not sufficently suppressing the tremors, and side effects starting to be disturbing. We have to find a new medication to go along with it, and so far this is not happening, and all it is, is to try to mitigate the tremors not cure them as I have no diagnosis as to the cause.

I am constantly shaking and sometimes it is like being hit. It is like being held and violently shook or hit. Sometimes it subsides enough to sleep but it is building up to a point where that may not be possible. I can't last much longer like this. 

Forgive me I have gone on awhile. I do not like to speak about my troubles, but since I am so greatly in need of help and it is so desperate I am relying on everyone.

Kyrie eleison. Christi eleison. Kyrie eleison.

RE: CJD. Not specifically, but just quickly reading about it, I think it would have shown up in the brain MRI.

I am not considered as someone with Parkinsons or Lou Gherig's(ALS) at this point, as the main symptom is simply muscle tremors, vibrations and jerks, not weakness. I get some pins and needles sensations.

My potassium levels are fine, and are my vitamin D levels. My B12 is tested fine. And my ANA turned out negative which points against auto-immune. I am going to try to explore auto-immune further but that one test being negative seems to be in the way of the doctors doing more tests.

Kyrie eleison.