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Author Topic: Two ER Visits Recently, Prayers Requested  (Read 10084 times)

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Offline Seraphina

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Re: Two ER Visits Recently, Prayers Requested
« Reply #30 on: February 07, 2021, 08:38:30 PM »
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    • Polymyositis?  Rabdomyolitis?  Distal or Oculogyroneal muscular dystrophy?  
    Have you been around bats, rodents, or their droppings? 
    Possible exposure to toxic mold or other fungi including leaf mulch?
    🙏 Keeping you in my prayers.
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    Offline confederate catholic

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #31 on: February 07, 2021, 10:02:35 PM »
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    •  :pray:
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    قامت مريم، ترتيل وفاء جحا و سلام جحا

    Offline FlosCarmeli13

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #32 on: February 08, 2021, 12:56:31 PM »
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    • Still praying  :pray:

    I really hope the doctors find out what is causing this.
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    Offline shin

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #33 on: February 15, 2021, 11:42:25 AM »
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    • Quote from: Seraphina on February 07, 2021, 08:38:30 PM
    Polymyositis?  Rabdomyolitis?  Distal or Oculogyroneal muscular dystrophy? 
    Have you been around bats, rodents, or their droppings?
    Possible exposure to toxic mold or other fungi including leaf mulch?
    🙏 Keeping you in my prayers.

    Thanks for the suggestions. I am getting a high quality air filter. I am also testing the water at a lab.

    No diagnosis. Just treating the symptoms. My medication dosage to keep the tremors under control keeps going up, but the tremors are getting worse faster and there's a limit to the dosage. Not happy with my current medical care.

    Many prayers.
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    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-

    Offline Miser Peccator

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #34 on: February 15, 2021, 04:43:52 PM »
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    • Quote from: shin on February 15, 2021, 11:42:25 AM
    Thanks for the suggestions. I am getting a high quality air filter. I am also testing the water at a lab.

    No diagnosis. Just treating the symptoms. My medication dosage to keep the tremors under control keeps going up, but the tremors are getting worse faster and there's a limit to the dosage. Not happy with my current medical care.

    Many prayers.
    So sorry to hear this!
    Praying for you now.
    Stay strong, Shin.
    I'm sure you are saving many souls by offering it up!
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    Offline josefamenendez

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #35 on: February 15, 2021, 05:32:52 PM »
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    • Sorry you are suffering so. Will pray for you tonight.
    Did they give you clonazepam for the tremors? Careful with that stuff. It may help but benzos at high doses are terrible.   I don't know if you are capable of doing so because of your severe symptoms, but sometimes an elimination water fast for a day or so ( whatever you are able to do) can help pinpoint what the causes are. Put a little sea salt in the water and drink from an actual glass, not a cup that may be leeching lead if it's made in China. ( heavy metals cause many neurological symptoms) Slowly add your usual diet back and see if it makes any difference. Magnesium supplements can relax smooth muscle as well.
    Barring something as taxing as a fast, you might want to try activated charcoal or bentonite clay to try and remove any offending metals or toxins. Seraphina is right- mold is a terrible offender and can mimic a variety of syndromes. When it comes to toxicity , you are better off in the hands of a naturopath.
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    Offline shin

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #36 on: February 17, 2021, 01:22:58 PM »
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    • I am on baclofen for the tremors. Clonidine for bp but it seems to help too.

    I do have some activated charcoal I will try. I am trying whatever supplements I can, as well as reviewing possible prescription medications. So far I am not finding an answer, Lord have mercy. Looking forwards to the arrival of the air filter in a couple days. Magnesium is a good suggestion it has helped a lot of people, it does not in my particular case.

    I have a new symptom of pins and needles in my throat and sinuses, and warmth, along with a feeling of difficulty breathing and being about to pass out. Taking some zyrtec helps with this, so I am wondering if this is some kind of allergic reaction fundamentally. But this could possibly be due to neurological damage too I think, though nothing has shown up yet on the MRI and CT scan.

    I just escalated things with my doctor with a letter that while not harsh could be taken badly due to its insistance on strong actions, not my usual course to be so forceful  but it is necessary that the treatment improve. Hopefully it will lead to a good rather than bad response. I am going downhill with the increasing symptoms and my medication is not keeping up, and palliative rather than curative. My life is indeed in danger here. I will be doing my best to seek second opinions regardless, but if I lose the doctor who has so far gotten me the medications I am on that would be quite difficult to deal with.

    Prayers deeply appreciated from the bottom of my heart.

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    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-

    Online Nadir

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #37 on: February 17, 2021, 04:57:10 PM »
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    •  :pray:
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    Offline Cera

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #38 on: February 21, 2021, 02:58:41 PM »
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    • Praying for you and your doctors. You were right to write a strong letter. Have you been evaluated by a neurologist? Also second opinion and third opinion if needed.
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    Offline donkath

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #39 on: February 21, 2021, 10:47:01 PM »
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    • So much for you to deal with..may it please God to give you a doctor in whom you have confidence.    :pray: :pray: :pray:
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    Offline Emile

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #40 on: February 21, 2021, 11:04:04 PM »
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    • Quote from: josefamenendez on February 15, 2021, 05:32:52 PM

    Barring something as taxing as a fast, you might want to try activated charcoal or bentonite clay to try and remove any offending metals or toxins.
    Not to hijack the thread, but have you had any experience using oral EDTA for removing heavy metals from the body?
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    Patience is a conquering virtue. The learned say that, if it not desert you, It vanquishes what force can never reach; Why answer back at every angry speech? No, learn forbearance or, I'll tell you what, You will be taught it, whether you will or not.
    -Geoffrey Chaucer

    Offline josefamenendez

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #41 on: February 22, 2021, 08:36:45 AM »
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    • Oral EDTA is pretty safe to use , although I wouldn't use it daily- maybe once a week. I Did IV chelation therapy with EDTA on my father 20 years ago and it is not without minor immediate side effects, overall I think it's effective, but it still is a chemical so it should be used with caution. My  very sick father lived another 9 years. I can't say it was due to chelation directly but a battery of IV vitamins as well, but first and foremost, it was getting him off the pharmaceuticals that helped tremendously.
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    Offline shin

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #42 on: February 22, 2021, 01:29:52 PM »
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    • I've never tried EDTA. So far the blood tests have not shown signs of heavy metal poisoning according to my doctor last I saw him. I am despite this getting the water comprehensively tested by a laboratory, and will test the walls for lead paint too, as it's an old house.

    Air filter arrived. My congestion is slightly less after using it but I continue to decline otherwise.

    I have 4 doctors appts in the next 3 weeks, none with a neurologist. The neurologist I saw twice and tried to get a diagnosis or at least some Q&A out of reacted badly to being pushed to do more. I am seeking a new one, getting a timely appt will be the next difficulty.

    I am reading neurological encyclopedias and lists of diseases, symptoms, and prescription medications.

    One of my appts is now for an opthamologist as I am starting to have vision issues. I am hoping it is just due to the tremors affecting the eye muscles. I am getting a rippling like water effect around my peripheral vision at times. 

    This is where things are as of today. Thank you again for the prayers, very much. Very much.

    Kyrie eleison. Christie eleison. Kyrie eleison.
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    Sincerely,

    Shin

    'Flores apparuerunt in terra nostra. . . Fulcite me floribus.' (The flowers appear on the earth. . . stay me up with flowers. Sg 2:12,5)'-

    Offline Emile

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #43 on: February 22, 2021, 02:25:12 PM »
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    • Quote from: shin on February 22, 2021, 01:29:52 PM
    I've never tried EDTA. So far the blood tests have not shown signs of heavy metal poisoning according to my doctor last I saw him. I am despite this getting the water comprehensively tested by a laboratory, and will test the walls for lead paint too, as it's an old house.

    Air filter arrived. My congestion is slightly less after using it but I continue to decline otherwise.

    I have 4 doctors appts in the next 3 weeks, none with a neurologist. The neurologist I saw twice and tried to get a diagnosis or at least some Q&A out of reacted badly to being pushed to do more. I am seeking a new one, getting a timely appt will be the next difficulty.

    I am reading neurological encyclopedias and lists of diseases, symptoms, and prescription medications.

    One of my appts is now for an opthamologist as I am starting to have vision issues. I am hoping it is just due to the tremors affecting the eye muscles. I am getting a rippling like water effect around my peripheral vision at times.

    This is where things are as of today. Thank you again for the prayers, very much. Very much.

    Kyrie eleison. Christie eleison. Kyrie eleison.
    :pray: :pray: :pray:
    Thank you for keeping us updated.
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    Patience is a conquering virtue. The learned say that, if it not desert you, It vanquishes what force can never reach; Why answer back at every angry speech? No, learn forbearance or, I'll tell you what, You will be taught it, whether you will or not.
    -Geoffrey Chaucer

    Offline Emile

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    Re: Two ER Visits Recently, Prayers Requested
    « Reply #44 on: February 22, 2021, 02:36:10 PM »
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    • Quote from: josefamenendez on February 22, 2021, 08:36:45 AM
    Oral EDTA is pretty safe to use , although I wouldn't use it daily- maybe once a week. I Did IV chelation therapy with EDTA on my father 20 years ago and it is not without minor immєdιαte side effects, overall I think it's effective, but it still is a chemical so it should be used with caution. My  very sick father lived another 9 years. I can't say it was due to chelation directly but a battery of IV vitamins as well, but first and foremost, it was getting him off the pharmaceuticals that helped tremendously.
    Thank you for the response JM. I've used oral EDTA for 10+ years for cardiovascular disease with very good results. Your right about not overdoing it though. The first time I used it I took too much and had a very intersting headache. And I took it daily for a while and developed a stomach ulcer. For the last several years I just use EDTA, along with a mineral supplement, when I notice symptoms. Most of the time 2-3 days of use every 2-3 months.
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    Patience is a conquering virtue. The learned say that, if it not desert you, It vanquishes what force can never reach; Why answer back at every angry speech? No, learn forbearance or, I'll tell you what, You will be taught it, whether you will or not.
    -Geoffrey Chaucer
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