Is there someone you know who can inform us here when you die?
Also... Do you have someone planning to offer the 30 Gregorian Mases for you?
I am grateful that you are still coming back here to spend some of your last days with us. May God give you strength and help you through the battle unto the end! 
MN IS A SLOW DISEASE. I was given a year but the progress of disability is unknown, it could be sooner or later. Legs and hands nearly numb now and will eventually stop being able to eat and breath. There will come a time I can no longer type even with one hand. When that happens I will get someone to let you know.
I am fortunate with 5 children, all good Catholics.
Meanwhile I will carry on as usual until that happens.
Thank God He has given me time.
So, let us wait awhile, no panic for now.